27 July 2011

Where have I been?

Woken at 4am by next doors cows in our hay field.
Whare have I been? Up to my neck in life, that's where! Between SOAR charity funding crisis, kids crisis and trying to stay afloat this blog hasn't even made it to the outer limits of my radar, so time for an update.
Scrumpy is still having a lot of seizures and is on yet another drug regime which thay know will only be a tempoaray fix if it works but hopefully it will take us to the point of having the VNS fitted, for which we now have funding thanks to the NHS. It's grasping at straws and I think it serves more to focus our attention and make us feel we're doing something than actualy achieving better seizure control. Everything crossed for the VNS working...
Bear has started having more seizures too and as the mood leveling medication wasn't working significantly she's coming off that so we're back to a bit more sweaty bouncing and even less sleep.
Both girls are doing well though, it's not all doom and gloom! We're having fun in the holidays with lots of beach trips and a visit to Landmark yet to come.
Staff has been an issue with one new member leaving us early - I won't say I sacked her but it just wasn't working. The rest of the team has settled down though and in the wake of Surfer girl leaving us we're in a new normal.
We have a new dog - Mickey - who has bonded with Bear in a big way and I will be contcating the service dog traiing people to get some help in developing that. Don't panic, Meg is still with us caring for my sanity and getting way too excited at the mere mention of cake and candles.
Birds are all still with us although it has been a terrible year for ducklings so far as none have survived. We have two birds sitting at the moment so fingers crossed we'll have some success.
Bruce still thinks he should be a house cat. No change there!
My friend and felow autism Mum Michelle has finally found the time and courage to publish her memoir - click herehttp://http://www.facebook.com/l.php?u=http%3A%2F%2Ffullsoulahead.com%2F2011%2F07%2F25%2Fintroducing-daughter-of-the-drunk-at-the-bar&h=iAQBZe9MK - she's a lovely person and does great things with her kids after a dodgy start in life so it promises to be a well written interesting read

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